Support

Useful links and resources for the Rare, Genetic, and Undiagnosed community

Community-Based Support

Alike WA - Online Directory of Peer Support Groups

Kiind - Supporting Families Raising Children with Disabilities

Health Consumers' Council WA - An Independent Voice Advocating for Patients in Western Australia

Genetic Alliance Australia - Supporting People Affected by Rare Genetic Conditions

Clinical Support

Rare Care Centre - Supporting Children and their Families Living with a Rare or Undiagnosed Disease

Research